Tag: muscular dystrophy

Answering 11 common questions about muscular dystrophy

Answering 11 common questions about muscular dystrophy

When it comes to disability, it’s been my experience that most people are either afraid to ask questions or will be completely shameless and ask way too many super invasive, personal questions. While I definitely prefer the first kind of person, the common thread is…

Meet my new wheelchair!

Meet my new wheelchair!

Y’all… almost a year later and it finally happened. My new wheelchair was approved and delivered! She’s here and she’s pink. Like, super pink. She’s also got some fun new features and is a different kind of chair that I’ve never used before. If you…

Why I quit my job

Why I quit my job

After job hunting for nearly two years, I honestly couldn’t explain to you the feeling of relief that washed over me when I heard that someone wanted to hire me. Like, I almost didn’t even believe it. It took weeks for it to fully sink…

5 ways to support a loved one with a rare disease

5 ways to support a loved one with a rare disease

Today is Rare Disease Day, which was created to raise awareness for rare diseases and the people who live with them. I was diagnosed with Congenital Muscular Dystrophy when I was a baby, which is a rare neuromuscular disease. If you want to learn more…

How I get ready in the morning

How I get ready in the morning

There’s a lot of curiosity surrounding disabled people and what our lives are like. When people learn about muscular dystrophy they sort of picture my life as being pretty unpleasant. But I think a lot of people would be surprised to see that a day…

What Muscular Dystrophy feels like

What Muscular Dystrophy feels like

A lot of people that I meet or talk to about my disability have never heard of it. Those who have heard of it often don’t really know much beyond the name. I usually just throw out some generic line about having weak muscles, but obviously,…

How my disability is teaching me to be more body positive

How my disability is teaching me to be more body positive

Feeling good, like genuinely good and not just a ‘hey I took a good selfie’ good, about your body is freaking hard. Especially with social media. Everywhere you look, you’re bombarded with beautiful people and we’re always our own worst critics, so we compare. If…

10 Things You Need to Know About Muscular Dystrophy

10 Things You Need to Know About Muscular Dystrophy

All my life, people have loved to ask me why I’m in a wheelchair. And all my life, people have been confused when I’ve told them I have Muscular Dystrophy. I didn’t realize that so few people knew about my disease. I mean we have…