Disability, lifestyle, and nerdy thoughts.

Tag: disability

What Muscular Dystrophy feels like

What Muscular Dystrophy feels like

A lot of people that I meet or talk to about my disability have never heard of it. Those who have heard of it often don’t really know much beyond the name. I usually just throw out some generic line about having weak muscles, but obviously, […]

How my disability is teaching me to be more body positive

How my disability is teaching me to be more body positive

Feeling good, like genuinely good and not just a ‘hey I took a good selfie’ good, about your body is freaking hard. Especially with social media. Everywhere you look, you’re bombarded with beautiful people and we’re always our own worst critics, so we compare. If […]

Guilt associated with your disability

Guilt associated with your disability

My friend mentioned to me on NYE that in 2018 she wants to stop apologizing for things that aren’t her fault/out of her control. What up Sam, you inspired a post while you were drunk off champagne! Thanks for that. I’ve been thinking about that pretty […]

I am literally always tired

I am literally always tired

I can’t even think about the fact that 2018 is next week. That just feels wrong and scary and way too futuristic. Remember when we were kids and we thought by 2020 we’d have flying cars and everything would be spacey and chrome? I’m having […]

Disability in Horror Movies

Disability in Horror Movies

I’m a big fan of horror movies. Not the gory stuff like Saw, mostly just the spooky jump scares and haunted house kinda films. I like the suspense, I like the cheesy predictability, and I love a good ghost story. I’ll be the first to […]

Craving Independence

Craving Independence

In college, my professor made us take a bunch of personality tests, and I remember having to answer whether I was a dependent or an independent person for some essay that I’m sure I was dreading. I remember having no idea how to answer because either […]

10 Things You Need to Know About Muscular Dystrophy

10 Things You Need to Know About Muscular Dystrophy

All my life, people have loved to ask me why I’m in a wheelchair. And all my life, people have been confused when I’ve told them I have Muscular Dystrophy. I didn’t realize that so few people knew about my disease. I mean we have […]

Finding my place in the online disabled community

Finding my place in the online disabled community

I have never experienced life without a disability. My disease was present at birth. I never took my first steps or learned to ride a bike. I also never knew any other way of life. My disabled body is my normal and it has been […]

The privilege of privacy

The privilege of privacy

Lately, I’ve been thinking about the fact that a lot of people don’t realize what a privilege it is to have privacy. For many, it’s just a given, but for disabled people like myself, it’s pretty rare. As someone who has never really had much independence, […]

That awkward moment when 3 different emergency services had no idea what to do with a wheelchair

That awkward moment when 3 different emergency services had no idea what to do with a wheelchair

My family has one car. It’s pretty old and not the greatest, but it gets us where we need to be so we’re grateful. We are hyper aware of how much we would struggle without it. On the side of our big green van (so […]