Tag: congenital muscular dystrophy

My friend and I are both in wheelchairs and our disabilities are nothing alike

My friend and I are both in wheelchairs and our disabilities are nothing alike

For today’s post, I teamed up with my friend Sarah to highlight just how different disabilities are from person to person, even between two wheelchair users. Lots of people who have limited or no experience with disability in general tend to lump all wheelchair users 

I love being disabled and I sometimes hate my disease

I love being disabled and I sometimes hate my disease

Being disabled is something I often celebrate. But here’s something I don’t say a lot: I really hate some of things muscular dystrophy does to me. Muscle cramps suck. Getting exhausted after moving 3 things off your desk is unendingly frustrating. Feeling like something should 

5 ways to support a loved one with a rare disease

5 ways to support a loved one with a rare disease

Today is Rare Disease Day, which was created to raise awareness for rare diseases and the people who live with them. I was diagnosed with Congenital Muscular Dystrophy when I was a baby, which is a rare neuromuscular disease. If you want to learn more