I love being disabled and I sometimes hate my disease

I love being disabled and I sometimes hate my disease

Being disabled is something I often celebrate. But here’s something I don’t say a lot: I really hate some of things muscular dystrophy does to me. Muscle cramps suck. Getting exhausted after moving 3 things off your desk is unendingly frustrating. Feeling like something should 

My 2020 goals

My 2020 goals

Happy New Year everyone! I hope you enjoyed the holidays and have had a happy start to 2020. I’m actually sick currently, my whole family is. Right after Christmas, my mom caught a cold and I’m now on day 8? I think? Of being sick. 

19 Things I learned in 2019

19 Things I learned in 2019

There are only two days left of 2019. What?! We’re reaching the end of an entire decade, and if you’re anything like me, you’re probably stressed out about that. Everyone is sharing their accomplishments from the past ten years, which is cool! But every time 

The cost of being disabled

The cost of being disabled

We all know that healthcare in America is one of the biggest scams in the world. It’s outrageously expensive and devastating to millions of people but that’s not news. We’ve been screaming about that for years. And we’ll be screaming about it for many more, 

I’m writing a novel

I’m writing a novel

Last month, I had this grand plan of prewriting a bunch of posts because I knew I’d be busy for all of November. That didn’t happen. I did try, I outlined all of them and started about half. But, well. I’m me and got overwhelmed 

7 times my mom was better than you

7 times my mom was better than you

Today is a special day because it’s my mom’s birthday! Are we all ready for me to gush about her for a minute? Okay good let’s go. My mom is the kind of person who will make your favorite meal and fill the bathroom with 

I actually finished inktober this year

I actually finished inktober this year

Happy Halloween! This has never really been my holiday. We don’t really decorate, the only movie I make sure to watch every year is Hocus Pocus, and I’ve never been through a haunted house. But I do like to try and participate in inktober sometimes! 

Disability Employment Awareness Month 2019

Disability Employment Awareness Month 2019

October is Disability Employment Awareness month! In true Karly fashion, I’m slipping this post in right at the last minute. Anyway, working for me has been a real stressful ride. I have a job, one I really like and am extremely grateful for. But it 

Come Out With Pride Orlando 2019

Come Out With Pride Orlando 2019

Happy Sunday! I’m so excited for today’s post because yesterday was Come Out With Pride Orlando!  My friends and I covered ourselves in rainbows and glitter and y’all – we were cute. Pride is one of my very favorite days. There’s something special about being 

Accessibility features that would change my life

Accessibility features that would change my life

I was talking with someone the other day about how a lot of standard accessibility features don’t really work for me. A room or building might be ADA compliant, but it’s still not actually accessible for me. Which makes sense, when you think about it.