I love being disabled and I sometimes hate my disease

I love being disabled and I sometimes hate my disease

Being disabled is something I often celebrate. But here’s something I don’t say a lot: I really hate some of things muscular dystrophy does to me. Muscle cramps suck. Getting exhausted after moving 3 things off your desk is unendingly frustrating. Feeling like something should…

The cost of being disabled

The cost of being disabled

We all know that healthcare in America is one of the biggest scams in the world. It’s outrageously expensive and devastating to millions of people but that’s not news. We’ve been screaming about that for years. And we’ll be screaming about it for many more,…

Disability Employment Awareness Month 2019

Disability Employment Awareness Month 2019

October is Disability Employment Awareness month! In true Karly fashion, I’m slipping this post in right at the last minute. Anyway, working for me has been a real stressful ride. I have a job, one I really like and am extremely grateful for. But it…

Accessibility features that would change my life

Accessibility features that would change my life

I was talking with someone the other day about how a lot of standard accessibility features don’t really work for me. A room or building might be ADA compliant, but it’s still not actually accessible for me. Which makes sense, when you think about it.…

Answering 11 common questions about muscular dystrophy

Answering 11 common questions about muscular dystrophy

When it comes to disability, it’s been my experience that most people are either afraid to ask questions or will be completely shameless and ask way too many super invasive, personal questions. While I definitely prefer the first kind of person, the common thread is…

Why I can’t travel

Why I can’t travel

Travel is the one thing that really bums me out on a regular basis. Because it’s one of the things I want to do more than anything in the world – and something I can’t do because I’m disabled. I have never taken a trip…

30 More fun things to do while homebound

30 More fun things to do while homebound

Without a doubt, one of my most popular posts has been 30 fun things to do while homebound. I’m not homebound full time, but I have been before. And I do still spend the vast majority of my time in my apartment. It gets boring…

What disability pride means to me

What disability pride means to me

Being proud of my disability isn’t always easy and I know that it’s confusing to a lot of people. But it’s not about actually loving my disease or enjoying the experience of having muscular dystrophy. Sometimes it’s hard for me to actually explain, because it’s…

19 Things I could have never done #withoutmywheelchair

19 Things I could have never done #withoutmywheelchair

July is disability pride month, and what better way to celebrate than to celebrate my wheelchair! I recently got a new chair (her name is Edna) after a long, difficult process and I’m excited about all the adventures she’ll take me on in the next…

4 disabled lgbtq+ creators AND 4 ways to make pride more accessible

4 disabled lgbtq+ creators AND 4 ways to make pride more accessible

It’s the last day of June aka pride month, which like, HOW are we halfway through the year?! I’m definitely scraping by at the last minute, but I couldn’t let the month pass me by without at least one pride themed post! So much progress…