Disability, lifestyle, and nerdy thoughts.

Disability

A rough week of getting sick and getting anxious

A rough week of getting sick and getting anxious

My body is wonky in a lot of ways, but I think the most obnoxious is how easily I get sick. There was a chunk of my childhood where I’d suddenly get sick, land in the ER, and spend a week in the hospital every […]

Dodging the disability debt spiral

Dodging the disability debt spiral

Not so fun fact: having a disability makes debt far more likely. Why? For a lot of reasons – enough that I could have a separate blog dedicated to the issue. Having a disability can make it difficult to work in a million different ways. […]

What do you do when you can’t see yourself represented anywhere

What do you do when you can’t see yourself represented anywhere

Close your eyes and picture the person who’s got it all figured out. The one who’s living the kind of life you want, the one with the answers and the one you look to when you’re trying to plan for your future. They’re the person […]

On the subject of pity

On the subject of pity

I was listening to Dax’s podcast, Armchair Expert, a few weeks ago and there was a moment that stood out to me in the episode with Ashton Kutcher. Ashton was talking about his disabled brother, who told him something along the lines of ‘every time […]

How to make your home more accessible when you can’t afford modifications

How to make your home more accessible when you can’t afford modifications

One of the most frustrating things about being a disabled human is the fact that our homes are so often inaccessible. I mean, I’ve lived in Florida since 2005 in three different homes, and not one had a bathroom that was actually accessible. Modifications are expensive and […]

What I wish my teachers had told me

What I wish my teachers had told me

When I was in school, it was wildly apparent that my teachers really had no idea what to do with disabled students. There weren’t very many of us, and even fewer of us in mainstream classes. So, when I showed up they didn’t know how […]

5 Trends that aren’t for disabled people

5 Trends that aren’t for disabled people

Let’s just get it out of the way real quick: the world isn’t designed for disabled people. I mean, some could argue that it’s often designed to actively exclude disabled people, but that’s not the point of this post. It kind of blows my mind […]

How my disability fuels my anxiety

How my disability fuels my anxiety

In a lot of ways, my disability feeds my anxiety. When you have a disease that progresses slowly over time, sometimes it kind of feels like you’re waiting for the other shoe to drop. You look at the different ways your body is already being […]

Disabled people NEED disabled friends

Disabled people NEED disabled friends

You know when your life is falling apart and you just need your best friend for five minutes because she’s the only person who can simultaneously call you out on your crap and hold your hand as she talks you off the edge of a […]

The Passing of HR620

The Passing of HR620

Today I came home from my shift in a good mood, but then I checked Twitter and saw that HR 620 passed. The House of Representatives voted today by a 225-192 margin to undermine the Americans with Disabilities Act. #HR620 — ACLU (@ACLU) February 15, […]