Why I don’t support the MDA telethon

Why I don’t support the MDA telethon

If you’re new here, I have a type of congenital muscular dystrophy. Muscular dystrophy is, in simple terms, a category of neuromuscular diseases. I personally don’t know which exact flavor of MD I have, since I’ve never been tested beyond my initial diagnosis I got 

Are you registered to vote?

Are you registered to vote?

Hi friends. There is so much at stake in this upcoming election. It is quite literally, and terrifyingly, a matter of survival. For disabled people, the lgbtq+ community, BIPOC, immigrants. For that matter, given our current administrations disregard for climate change or any science at 

Why did it take a global pandemic for things to become accessible?

Why did it take a global pandemic for things to become accessible?

I keep finding myself asking one question over and over: why did it take a global pandemic for things to become accessible? Obviously, things aren’t perfect. There’s still so much work left to do and it’s not like a flip was switched making the ADA 

My friend and I are both in wheelchairs and our disabilities are nothing alike

My friend and I are both in wheelchairs and our disabilities are nothing alike

For today’s post, I teamed up with my friend Sarah to highlight just how different disabilities are from person to person, even between two wheelchair users. Lots of people who have limited or no experience with disability in general tend to lump all wheelchair users 

11 Wheelchair accessible date ideas

11 Wheelchair accessible date ideas

In honor of Valentines Day being just a few days away, I thought I would console my sadly single self by coming up with some fun date ideas that are all wheelchair accessible! There’s this strange belief that disabled people don’t or can’t date, and 

I love being disabled and I sometimes hate my disease

I love being disabled and I sometimes hate my disease

Being disabled is something I often celebrate. But here’s something I don’t say a lot: I really hate some of things muscular dystrophy does to me. Muscle cramps suck. Getting exhausted after moving 3 things off your desk is unendingly frustrating. Feeling like something should 

The cost of being disabled

The cost of being disabled

We all know that healthcare in America is one of the biggest scams in the world. It’s outrageously expensive and devastating to millions of people but that’s not news. We’ve been screaming about that for years. And we’ll be screaming about it for many more, 

Disability Employment Awareness Month 2019

Disability Employment Awareness Month 2019

October is Disability Employment Awareness month! In true Karly fashion, I’m slipping this post in right at the last minute. Anyway, working for me has been a real stressful ride. I have a job, one I really like and am extremely grateful for. But it 

Accessibility features that would change my life

Accessibility features that would change my life

I was talking with someone the other day about how a lot of standard accessibility features don’t really work for me. A room or building might be ADA compliant, but it’s still not actually accessible for me. Which makes sense, when you think about it. 

Answering 11 common questions about muscular dystrophy

Answering 11 common questions about muscular dystrophy

When it comes to disability, it’s been my experience that most people are either afraid to ask questions or will be completely shameless and ask way too many super invasive, personal questions. While I definitely prefer the first kind of person, the common thread is